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Who we are

HFNZ was originally founded as the New Zealand Haemophilia Society in 1958. The Foundation’s story begins with one family seeking more information of their sons’ rare, and then untreatable, disease, haemophilia.

Haemophilia is an inheritable disorder characterised by a reduction or absence of a protein in the blood essential for clotting. A group of like-minded people eventually joined together to form an organisation whose goals are very similar to the those HFNZ holds today – to connect families of people with haemophilia with each other, to help educate members and the general public about bleeding disorders, and to provide news of and access to the latest medical advances.

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