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Living with a Bleeding Disorders

Growing Up[sitetree_link,id=108]

Growing Up

Dealing with Bullying

Both children with and without haemophilia get bullied. Although children with special health needs such as a bleeding disorder can be at an increased risk of being bullied, haemophilia...

von Willebrand disorder

One of the factors in our blood that helps form blood clots is von Willebrand factor. It acts as glue, sticking platelets to the wall of a broken...

Types of vWD

There are three main types of vWD. Within each type, the disorder can be mild, moderate, or severe. Bleeding symptoms can be quite variable within each type depending...

vWD Inheritance

As vWD is heritary, there is usually evidence of a family history of bleeding problems, but the symptoms of VWD can vary a lot within a family and...

vWD Diagnosis & Treatment

If vWD is suspected, your doctor can arrange tests to determine how long you bleed before your blood clots and blood tests to measure your level of von...

Rare Bleeding Disorders

With haemophilia A there is a factor VIII deficiency, with haemophilia B there is a factor IX deficiency and with von Willebrands disorder there is a von Willebrand...

Rare Disease Patients to confront Pharmac

Two dozen rare disease patients and their advocates will front up to talk to Pharmac directly on Tuesday 15 April in Wellington. The drug buying agency is hosting a...

Bloodline March 2014

 Features: 2014 Children's Education Workshops, School Camps, Fibrosis vs. Cirrhosis... Click cover to read PDF  HFNZ Bloodline March 2014 Cover Page 01