-
Gene therapy found effective in haemophilia B
In 10 patients with severe haemophilia B, the infusion of a single dose of gene therapy with an AAV8 vector resulted in long-term therapeutic factor IX expression associated...
Read more -
Parents Empowering Parents (PEP) workshop
This is an amazing parenting programme especially designed for parents with a child with a bleeding disorder. Raising a child with a genetic bleeding disorder is a challenge that...
Read more -
Share your ideas for the 2015 Australia and New Zealand Haemophilia Conference
The 17th Australian & New Zealand Conference on Haemophilia & Related Bleeding Disorders will be held from 1-3 October 2015 at the Gold Coast. The Haemophilia Foundation of Australia...
Read more -
Adult Workshop Weekend
This year in beautiful Wellington we had one of the largest ever adult education workshops. It was great to have such a range of people with bleeding disorders...
Read more -
Bloodline March 2015
Click on cover below to read the March 2015 issue of Bloodline. Features include: Family Camp 2015 was Out of This World! Siblings: Best of friends and rivals Twinning...
Read more -
World Haemophilia Day 2015
Join us on April 17 to raise awareness about bleeding disorders and the need to build a family of support for those living with them. Families come in many...
Read more -
PHARMAC seeking feedback on funding proposal for haemophilia treatments
PHARMAC is proposing changes to the funding of haemophilia treatments, and is seeking feedback on its proposal. The four types of haemophilia treatments that are currently funded would continue...
Read more -
Bloodline June 2015
Click on cover below to read the June 2015 issue of Bloodline. Features include: World Haemophilia Day 2015 Buddy Awards 2015 Risks for inhibitor development Possible changes to product...
Read more -
National Family Camp 2016 - Rotorua
The National Family Educational Camp is an educational weekend for those families who have a child with a bleeding disorder aged between 0 to 10 years – with...
Read more
