HFNZ NATIONAL COUNCIL MEMBERS:
President – Deon York
Deon has been president since 2007 and a volunteer with this organisation since the late nineties. He is a member of the World Federation of Hemophilia’s (WFH) Board of Directors (2010 -) and serves on a range of WFH committees, including chair of Fundraising and Resource Development, chair of the Youth Leadership Advisory Committee, and co-chair of the National Member Organisation Capacity Building Committee.
Deon works at the New Zealand Health Quality & Safety Commission as programme manager for the Commission’s consumer engagement programme. He has previously collaborated with the University of Auckland in producing a follow up monograph to the Bleeding Nuisance, which investigated the experience of living with haemophilia in the context of new technologies. An update to this work is currently being developed. Deon has also served on the National Haemophilia Management Group.
Vice President - Catriona Gordon
Catriona and her husband Eugene live in Rotorua with their three sons. Their two eldest boys have severe haemophilia A. Catriona has been involved with the Foundation as a committee member of the Midland Branch since 2005, and as a council member since 2008. She is currently Vice-President and the Safety and Supply Officer for the foundation. As such, she sits on the National Haemophilia Management Group as the patient representative. Catriona has alsp been involved in the Foundation’s twinning programme with Cambodia.
Catriona is a qualified lawyer and runs her own law practice in Rotorua.
Vice President – Karl Archibald
Treasurer & Northern Delegate - Hemi Waretini
Hemi is based in Auckland and is an active member of the HFNZ, contributing as Treasurer of the Northern, Piritoto and Youth MRG committees. He also regularly participates at MRG events and as a team leader at national camps.
Piritoto Delegate – Te Whainoa Te Wiata
Tēnā koutou te whānau o HFNZ. My name is Te Whainoa Te Wiata, I have severe haemophilia A, I am a father of two and I am currently living in Auckland with my lady Rosalie. I am in my third year as a student of Linguistics at the University of Auckland, a Reo Māori tutor at The Unitech of Auckland and I am a musician. I feel privileged to have the opportunity to be a part of the National Council on behalf of Piritoto. This a great chance to learn from those who I have looked up to for many years and hopefully grasp a better understanding of the way things are run, my only hope is that I will be able to contribute effectively to the team.
Ngā mihi nui kia koutou katoa.
Central Delegate – Ana Clulee
Ana lives in Wellington, and has 2 adult sons, Michael and David. She was born and raised in Samoa, before immigrating to NZ in 1973.
She values the experience of serving on the committees that she belongs to, and gains great satisfaction in helping others. It is rewarding to learn new skills, and getting to know other people better through networking and my local community.
Ana was diagnosed with von Willebrands in 1990. Sadly, she felt alone and scared when she was diagnosed, as she did not know anyone with the same condtion at the time.
"I am honoured and delighted to be the delegate of the Central Region on HFNZ council. I will endeavour and aspire to serve and represent all members of HFNZ, and to learn new skills in collaboration with the executive members".
Southern Delegate - James Poff
James lives in Christchurch. James became involved with the Foundation through his son having severe haemophilia A.
James and family are active members of the Southern Branch of the foundation, James believes that part of being involved in any organisation also includes volunteering to take on roles such as the Southern Delegate to ensure the Foundation continues to prosper and provide on-going support for all.
Midland Delegate - Tineke Maoate
My name is Tineke Maoate. My husband Jonathan and I both have different bleeding disorders, and we have 7 beautiful children who also suffer from Platelet disorders to different degrees. We both love to work and support other members with bleeding disorders and sharing our challenges living day to day with our disorder. My family and I have been members of HFNZ for about 6 years and have been privileged to meet other families and individuals living with haemophilia, von Willibrands, and Platelet disorders.
I am currently on the Midlands Region’s committee and am the Midland council representative. In my spare time I work as a volunteer fire fighter, BOT member for my children’s school and John and I foster children through Oranga Tamariki.
I hope to educate and support other families learning about their conditions. I enjoy being on the National Council and leading HFNZ into the future.
Youth Delegate - Lauren Phillips
Lauren has been involved in the bleeding disorders community and the Haemophilia Foundation of New Zealand since 2003 when her family returned to New Zealand from the UK. She is an active member of the National Youth Committee and is the Youth Delegate to HFNZ’s National Council. Lauren has worked alongside others to lead the youth twinning pilot between Nepal and New Zealand which is now in its final year. She currently sits on the World Federation Youth Committee which provides advice on current and new youth-related activities for the WFH.
Lauren is a qualified lawyer practicing resource management law in Wellington and lives between the Kapiti Coast and Palmerston North with her husband, daughter, and dog. As a young woman with moderately severe von-willebrands Lauren has a particular interest in the experiences of women living with a bleeding disorder as well as the engagement of youth throughout the foundation to ensure its future success.
Seconded Member – Steve Waring, Kiwifirst CEO
An experienced board member and owner of direct marketing company KiwiFirst, Steve brings a wealth of experience to his governance role from both the not-for-profit and commercial worlds.
Steve was born with severe haemophilia A, lives in Wellington, and has been a co-opted HFNZ board member since 2009.
Ex Officio Member – Sue Ellis, HFNZ CEO
Sue is the HFNZ CEO and has a broad range of experience in health and education. She has worked for many years in government and non-government organisations in many roles, including clinical manager, policy analyst, advisor, project manager, and strategic policy manager.
Sue trained in mental health nursing and taught for a number of years in the graduate nursing programmes. She later worked as a nurse consultant before moving to the Ministry of Health as a policy analyst, and then as a senior advisor with the Mental Health Commission. For the last few years, after setting up a consultancy business in health, education and research Sue has been providing consultancy services to a wide range of health organisations.
Sue lives by the beach north of Levin with her partner, their dog, and a cat.