HFNZ NATIONAL COUNCIL MEMBERS:
President – Deon York
Deon has been president since 2007 and a volunteer with this organization since the late nineties. He is a member of the World Federation of Hemophilia’s (WFH) Board of Directors (2010 -) and serves on a range of WFH committees, including chair of Fundraising and Resource Development, chair of the Youth Leadership Advisory Committee, and co-chair of the National Member Organization Capacity Building Committee.
Deon works at the New Zealand Health Quality & Safety Commission as programme manager for the Commission’s consumer engagement programme. He has previously collaborated with the University of Auckland in producing a follow up monograph to the Bleeding Nuisance, which investigated the experience of living with haemophilia in the context of new technologies. An update to this work is currently being developed. Deon has also served on the National Haemophilia Management Group.
Vice President - Catriona Gordon
Catriona and her husband Eugene live in Rotorua with their three sons. Their two eldest boys have severe haemophilia A. Catriona has been involved with the Foundation as a committee member of the Midland Branch since 2005, and as a council member since 2008. She is currently Vice-President and the Safety and Supply Officer for the foundation. As such, she sits on the National Haemophilia Management Group as the patient representative. Catriona has alsp been involved in the Foundation’s twinning programme with Cambodia.
Catriona is a qualified lawyer and runs her own law practice in Rotorua.
Vice-President – Karl Archibald
Treasurer & Northern Delegate - Hemi Waretini
Hemi is based in Auckland and is an active member of the HFNZ, contributing as Treasurer of the Northern, Piritoto and Youth MRG committees. He also regularly participates at MRG events and as a team leader at national camps.
Piritoto Delegate – Te Whainoa Te Wiata
Tēnā koutou te whānau o HFNZ. My name is Te Whainoa Te Wiata, I have severe haemophilia A, I am a father of two and I am currently living in Auckland with my lady Rosalie. I am in my third year as a student of Linguistics at the University of Auckland, a Reo Māori tutor at The Unitech of Auckland and I am a musician. I feel privileged to have the opportunity to be a part of the National Council on behalf of Piritoto. This a great chance to learn from those who I have looked up to for many years and hopefully grasp a better understanding of the way things are run, my only hope is that I will be able to contribute effectively to the team.
Ngā mihi nui kia koutou katoa.
Central Delegate – Stephanie Coulman
Stephanie lives in Wellington. Her main motivation for being involved with the Foundation is through her son who has severe haemophilia A. She hopes that by being involved she can ensure the Foundation continues to be a strong, energetic and vibrant organisation, providing education, support and social networks for our members living with a bleeding disorder.
Southern Delegate - Theresa Stevens
Midland Delegate - Tineke Maoate
My name is Tineke Maoate. My husband Jonathan and I both have different bleeding disorders, and we have 7 beautiful children who also suffer from Platelet disorders to different degrees. We both love to work and support other members with bleeding disorders and sharing our challenges living day to day with our disorder. My family and I have been members of HFNZ for about 6 years and have been privileged to meet other families and individuals living with haemophilia, von Willibrands, and Platelet disorders.
I am currently on the Midlands Region’s committee and am the Midland council representative. In my spare time I work as a volunteer fire fighter, BOT member for my children’s school and John and I foster children through Oranga Tamariki.
I hope to educate and support other families learning about their conditions. I enjoy being on the National Council and leading HFNZ into the future.
Youth Delegate - Courtney Stevens
Seconded Member – Steve Waring, Kiwifirst CEO
An experienced board member and owner of direct marketing company KiwiFirst, Steve brings a wealth of experience to his governance role from both the not-for-profit and commercial worlds.
Steve was born with severe haemophilia A, lives in Wellington, and has been a co-opted HFNZ board member since 2009.
Ex Officio Member – Sue Ellis, HFNZ CEO
Sue is the HFNZ CEO and has a broad range of experience in health and education. She has worked for many years in government and non-government organisations in many roles, including clinical manager, policy analyst, advisor, project manager, and strategic policy manager.
Sue trained in mental health nursing and taught for a number of years in the graduate nursing programmes. She later worked as a nurse consultant before moving to the Ministry of Health as a policy analyst, and then as a senior advisor with the Mental Health Commission. For the last few years, after setting up a consultancy business in health, education and research Sue has been providing consultancy services to a wide range of health organisations.
Sue lives by the beach north of Levin with her partner, their dog, and a cat.