Deon York, Lay member, WFH Board of Directors, shares an inspiring message and an overview of the multidisciplinary program that will be part of the WFH Virtual Summit: Connecting the Global Bleeding Disorders Community, which will be held from Sunday, June 14 to Friday, June 19, 2020. Watch the video here!
Meet some of the speakers who will be taking part in the WFH Virtual Summit.
Associate Member, Bloodworks Northwest Research Institute
Professor of Pediatrics and Pathology, University of Michigan
Clinical Professor, University of Western Australia
What does quality of life mean to you? Living with (an inherited) bleeding disorder in a changing world – Multidisciplinary session:
Quality of life for patients is a topic often discussed among clinicians. This session will focus on what quality of life means from the perspective of a person living with a bleeding disorder. This session asks you to consider: what does quality of life mean to you, especially during a pandemic?
Redefining prophylaxis in the modern era – Medical session:
The currently evolving novel therapies for the management of hemophilia has ushered in a new era characterized by improved prophylaxis targets and outcomes. In this session, the speakers will redefine prophylaxis in the modern era by revisiting its definition, presenting data to support higher trough levels to achieve through prophylaxis, and introducing steady-state hemostasis as a possible new target for prophylaxis. The benefits of low-dose prophylaxis will also be discussed.
Impact of challenges of bleeding disorders in women and girls:
The session aims to highlight the challenges women and girls experience in getting proper diagnosis, care, and treatment for their bleeding disorder. What are the global and personal impacts of having a bleeding disorder for women and girls? The session addresses key issues such as reproductive challenges, diagnostic dilemmas, and treatment options for heavy menstrual bleeding. The session will also share examples of what actions are being taken to improve the lives of women and girls worldwide with bleeding disorders.
The session will also include a presentation on the impact of the COVID-19 pandemic on women and girls with bleeding disorders.
The WFH Virtual Summit will be held in English, and select sessions will be translated. We will confirm translations in future communications.