HFNZ Publications

HFNZ produce a number of publications and resources for people with bleeding disorders and the general public.

Bloodline

HFNZ quarterly newsletter with stories on events, members, research, regional updates and other topics of interest to the bleeding disorder community in New Zealand. Available in print and online.
Go to Bloodline webpage

HFNZ Panui

HFNZ produces a short monthly update on news and events that is distributed by email and available online.
Got to Panui webpage

HFNZ Annual Report


Each March HFNZ produces a report of the activities and financial information for the previous year. Click on the links to download recent Annual Reports.


Research

HFNZ has initiated or produced research into various aspects of haemophilia. Some examples are below. For hard copies, please contact HFNZ National Office.
  • 2009 HFNZ Needs Assessment - Final Report; available in hard copy or online
  • You re Amongst Brothers  - A qualitative study of the impact of attending a bleeding disorders camp (Mackenzie D); available in hard copy
  • The Social Ecology of New Technologies and Haemophilia in New Zealand, a Bleeding Nuisance revisited (Park J and York D); available in hard copy and online, more information here
  • His Sisters and His Cousins and His Aunts - Discourses of haemophilia and womens experiences in New Zealand; available online, more information here

Books

 

Still Standing: Haemophilia Foundation 1958-2008

2008 marked the 50th anniversary of the Haemophilia Foundation of New Zealand. Still Standing describes both the history of the organisation and personal stories of bleeding disorder through this time.

The struggle for survival brought on by the consequences of haemophilia pushed a group of people into action to try and improve the lives of children born with this rare bleeding disorder.

The past fifty years have brought many tears, but also opportunities for incredible achievements. The story of the Haemophilia Foundation of New Zealand and its people is an example of individuals coming together and turning what could be viewed as a tragedy into a success.

A must read for all people with bleeding disorders in their family. Book copies are available for $10.00 NZ. Contact HFNZ National Office to order yours.

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