Chief Executive, Deon York
Deon brings extensive governance and leadership experience from the health and community sector to this role and is a strong champion for improving the lives of people affected by haemophilia and all inherited bleeding disorders.
He has been a passionate advocate for the New Zealand bleeding disorders community for more than 25 years, holding many roles at board level. He also served as a director of the board of the World Federation of Hemophilia (WFH) for ten years (2010 - 2020), and chaired or served on a range of WFH committees. He currently remains engaged with the WFH in a range of areas.
He completed his undergraduate studies at Victoria University of Wellington, and postgraduate studies at the University of Auckland. Deon has been involved with research exploring the experiences of the bleeding disorders community, culminating in the publication of More than a bleeding nuisance: Haemophilia in Aotearoa New Zealand in 2019, co-authored with Julie Park, Kathryn Scott, and Mike Carnahan. He is a member of the national haemophilia management group, and an ex officio member of HNZ’s board.
Deon is driven by contributing to a health care system that is determined and shaped by what matters to the people it serves. This theme has been constant in his career. In 2024 he was awarded the International Frank Schnabel Volunteer Award in recognition of his global contributions to training and advocacy.
Email Deon at ceo@haemophilia.org.nz
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