HFNZ Board members

Chair – Deon York

Deon was last elected as president in 2022. He has been a volunteer with the organisation since the late nineties, holding many roles at board level. He served as a director of the board of the World Federation of Hemophilia (WFH) for ten years (2010 - 2020), and chaired or served on a range of WFH committees. He currently remains engaged with the WFH in a range of areas.

Deon has been involved with research exploring the experiences of the bleeding disorders community, culminating in the publication of More than a bleeding nuisance: Haemophilia in Aotearoa New Zealand in 2019, co-authored with Julie Park, Kathryn Scott, and Mike Carnahan.  He is a member of the national haemophilia management group. Deon works in the health sector.

Vice Chair - Catriona Gordon

Catriona lives in Rotorua with her three sons. Her two eldest boys have severe haemophilia A. Catriona has been involved with the Foundation as a committee member of the Midland Branch since 2005, and as a council member since 2008. She is currently Vice-President and the Safety and Supply Officer for the Foundation. As such, she sits on the National Haemophilia Management Group as the patient representative. Catriona has also been involved in the Foundation’s twinning programme with Cambodia.

Catriona is a qualified lawyer and runs her own law practice in Rotorua.

Vice Chair – Karl Archibald

Karl is based in Christchurch where he lives with his wife Lisa and two children Leah and Lachie. Karl has severe Haemophilia A and a secondary condition, Classical Ehlers-Danlos Syndrome (cEDS), both of which are shared with his daughter.

Karl has been involved with HFNZ from 1996 when he attended his first camp.
From 2005 he has been an active member of the Southern Committee and a Board Member since 2007. He has mentored and supported HFNZ camps and activities and participated in international youth development and mentorship programmes such as SURO and AFFIRM.

Karl has a particular interest in the future of the Haemophilia Foundation and how to best support members.

Karl works as an Operations Manager for a construction firm overseeing maintenance of social housing between Christchurch and Palmerston North

Treasurer & Northern Delegate - Hemi Waretini

Tēna koutou katoa
Ko Tainui te waka
Ko Waikato, Ko Maniapoto ngā iwi
Ko Karioi, Ko Mōtakiora, Ko Ōwhawhe ngā maunga
Ko Whaingaroa te moana
Ko Waikato, Ko Te Mangaōkewa, Ko Waitomo ngā awa
Ko Poihākena, Ko Te Tōkanga-nui-a-noho, Ko Tokikapu ngā marae
Ko Hemirau Waretini taku ingoa
Tēnā anō hoki koutou katoa

Hemirau has Haemophilia B and lives in Tāmaki Makaurau/Auckland with his wife, Erica and their dog Zoey. 

Hemirau has been involved with HFNZ from a young age and has supported national workshops, conferences and camps. Hemirau has been an active member of the Northern region and worked with others to lead subcommittees involving substantial work in the areas of Māori engagement and youth development. He was also involved in the Foundation’s twinning with the Nepal Haemophilia Society, leading delivery of workshops aimed at developing the capability of youth members of Nepal’s bleeding disorders patient organisation. Hemirau works in the public sector.

Midland Delegate - Tineke Maoate

My name is Tineke Maoate. My husband Jonathan and I both have different bleeding disorders, and we have seven beautiful children who also suffer from platelet disorders to different degrees. We both love to work and support other members with bleeding disorders and sharing our challenges living day to day with our disorder. My family and I have been members of HFNZ for about six years and have been privileged to meet other families and individuals living with haemophilia, von Willebrands, and platelet disorders.

I am currently on the Midland Region committee and am the Midland national council representative. In my spare time I work as a volunteer fire fighter, BOT member for my children’s school and John and I foster children through Oranga Tamariki.

I hope to educate and support other families learning about their conditions. I enjoy being on the National Council and leading HFNZ into the future.

Youth Delegate - Lauren Phillips

Lauren has been involved in the bleeding disorders community and the Haemophilia Foundation of New Zealand since 2003 when her family returned to New Zealand from the UK. She is an active member of the National Youth Committee and is the Youth Delegate to HFNZ’s National Council. Lauren has worked alongside others to lead the youth twinning pilot between Nepal and New Zealand, which is now in its final year. She currently sits on the World Federation Youth Committee, which provides advice on current and new youth-related activities for the WFH.

Lauren is a qualified lawyer practicing resource management law in Wellington and lives between the Kapiti Coast and Palmerston North with her husband, daughter, and dog. As a young woman with moderately severe von Willebrands Lauren has a particular interest in the experiences of women living with a bleeding disorder as well as the engagement of youth throughout the Foundation to ensure its future success.

Seconded Member – Steve Waring, Kiwifirst CEO

An experienced board member and owner of direct marketing company KiwiFirst, Steve brings a wealth of experience to his governance role from both the not-for-profit and commercial worlds.

Steve was born with severe haemophilia A, lives in Wellington, and has been a co-opted HFNZ board member since 2009.