Improving the lives and long-term outcomes
of people impacted by bleeding disorders

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Promoting excellence in haemophilia 
care, education, advocacy and support.

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HFNZ has a team of dedicated and passionate staff to carry out the organisation's goals.


Chief Executive – Sue Ellis

Commencing with HFNZ on 14 November 2018, Sue comes to the position of CEO with a broad range of experience in health and education. She has worked for many years in government and non-government organisations in many roles, including clinical manager, policy analyst, advisor, project manager, and strategic policy manager.

Sue trained in mental health nursing and taught for a number of years in the graduate nursing programmes. She later worked as a nurse consultant before moving to the Ministry of Health as a policy analyst, and then as a senior advisor with the Mental Health Commission. For the last few years, after setting up a consultancy business in health, education and research Sue has been providing consultancy services to a wide range of health organisations.

Sue lives by the beach north of Levin with her partner, their dog, and a cat. 

Email Sue at



Communications Manager – Phil Constable

Joining HFNZ in June 2015, Phil arrived by way of Marketing, Copywriting, and Social Media.

With a background in Social Work and Information Design, along with an Honours Degree in English Literature, Phil has a range of skills that help to enhance the work done by the team at HFNZ.

Outside of work, Phil enjoys rugby (watching not playing), test cricket, reading, reading, and reading, and his kids (not to mention the grand-kids, Cairo & Tommy, and the dogs, Edith & Pedro.) 

Email Phil at

Administrator - Leanne Pearce

Leanne has been employed at HFNZ since 2004. She had a short break in 2017/18, before being welcomed back in 2019 on a part-time basis. Leanne also works at Ko Taku Reo and is enjoying learning sign language. Outside of work, Leane enjoys spending time with family and friends.

Email Leanne at


Northern Outreach Worker – Darian Smith

Darian has a background in counselling and family therapy and joined HFNZ in 2021 after 11 years as a fieldworker for the Muscular Dystrophy Association of New Zealand.  He has a passion for supporting people living with genetic conditions, in part because his wife has myotonic dystrophy.
Outside of work, Darian writes fantasy novels, for which he has received the Sir Julius Vogel Award and Koru Awards.

Email Darian at


Midland Outreach Worker - Laura-Lee Perawiti

Kia ora Huihui mai tatou. No Waikato, Raukawa, Rereahu me Maniapoto ahau.
I descend from the tribes of Waikato, Raukawa, Rereahu and Maniapoto and currently reside in Kirikiriroa (Hamilton).

I am an Indigenous Māori and bicultural social worker practitioner and I am registered with the Social Worker Registration Board of New Zealand. My background is in tertiary and primary education, disability, child protection and whānau advocacy, having worked and held various roles within Government, non-Government and Iwi sectors.

I have a social services business that provides Indigenous Māori and Bicultural supervision to frontline government and non-government practitioners and students, including education and training in traditional Māori healing and transitional support services.

Outside of my HFNZ role I am a mother to 3 young men, and a newly grandmother. I am an Iwi board member, and an effective Hapu, Marae and community member.

I enjoy exploring, learning new things, reading and spending quality time home with my whānau.

Email Laura-Lee at 


Central Outreach Worker – Lynne Campbell

Since April 2009, Lynne has worked with families as the Central Outreach Worker for the Foundation providing education, support and advocacy. Her regional home base is in Wellington.

Lynne is a Registered Teacher with a background in Biology and Science teaching, as well as Transition/Careers Education at Secondary level. Lynne has also held educational guidance and advocacy roles managing both the quality of pastoral support, and appropriateness of curriculum level and delivery, to a diverse range of student groups and enrolment categories, including adult students.

With a keen interest in genetics, a science background and transferrable guidance skills, Lynne has redirected her passion from working with students to helping people of all ages with rare inherited bleeding disorders.

Her interests outside of work include family, art, fashion, music plus regular voluntary work to raise funds for animal welfare.

Email Lynne at


Southern Outreach Worker - Rosie Maguire

As a registered primary and drama teacher, Rosie began her career in the classroom. From leaving teaching she worked in project management before starting a career in media. Working her way up to a Producer for children's television Rosie has had the pleasure of working on many different creative projects and has worked with communities from all around the country.

She is looking forward to jumping into a new line of work through the Foundation and connecting with the Haemophilia community of Te Waipounamu. 

Email Rosie at