Improving the lives and long-term outcomes of people affected by bleeding disorders since 1958

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Promoting excellence in haemophilia 
care, education, advocacy and support.

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Glenn Pierce dives deeper into the programme!

Join the world bleeding disorder community in an online version of the WFH World Congress!

Register now! We are excited to announce that registration for the WFH Virtual Summit: Connecting the Global Bleeding Disorders Community is now open! Join us for six full days of meaningful exchanges. Registration is free!

The WFH Virtual Summit Committee understands the importance of sharing knowledge of VWD and the Summit program reflects this. Glenn Pierce, MD, PhD, WFH Vice-President, Medical, highlights the importance of bringing awareness to VWD. Watch the video here:

Paula James
Professor, Hematologist, Department of Medicine, Graduate Program Director, Translational Medicine, Queen’s University

  Lauren Phillips
Youth Committee, Haemophilia New Zealand

  Mark Skinner
President/CEO, Institute for Policy Advancement Ltd.

Session Highlights

WFH Educational session - Patient Focus: ASH, ISTH, NHF, WFH Guidelines on the Diagnosis and Management of VWD:

Join us for this patient-focused preview of two of the recommendations resulting from the international collaboration to develop guidelines for the diagnosis and management of von Willebrand disease (VWD), ahead of publication later this year. Learn why international clinical guidelines are particularly important to this community, how they were developed, and the important contributions of various stakeholders throughout this process.

VWD (medical):

Von Willebrand disease (VWD) is the most common inherited bleeding disorder. VWD is caused by deficiencies in von Willebrand factor (VWF), a critical adhesive hemostatic protein. This session provides an overview of VWD diagnosis and treatment, special considerations in treating women with VWD, and current genomic approaches to VWD.

VWD, a closer look (multidisciplinary):

Learn more about VWD and the perception of the condition throughout the world, how the WFH is working on it, psychosocial issues, the differences between men and women, and the treatment options available.

The session aims to answer the following questions: how is VWD perceived worldwide? What is the perspective of those who suffer it? Is there a difference between men and women?

The WFH Virtual Summit will be held in English, and select sessions will be translated. We will confirm translations in future communications.