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Our work

HNZ runs a number of programmes and services for people with bleeding disorders and their families.

 

Improving the lives and long-term outcomes of people affected by bleeding disorders since 1958

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Promoting excellence in haemophilia 
care, education, advocacy and support.

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We offer regional and national programmes to our members with an emphasis on networking, peer support, and education. Members are encouraged to register early to secure a spot. Learn more below.

Adult wellness weekend. 31 October – 2 November 2025, Wellington

Are you a person with a bleeding disorder or do you live with one? It’s time to re-connect at this year’s adult wellness weekend. The emphasis is on learning together, and having fun with a packed weekend of activities and socialising.

This weekend is an opportunity for adults with bleeding disorders, and their partners, to discuss their experiences of living and aging with a bleeding disorder. The educational focus of the weekend is to increase knowledge about bleeding disorders, about upcoming trends and treatments, and about the provision of health care in New Zealand, as well as learning about HNZ and its activities.

Click here for more details and to register!

Teen and youth camp. 30 January 2026 – 1 February 2026, Auckland

This event is for 11- to 18-year-olds and is extended to siblings who are part of the wider support network for their brother or sister who lives with a bleeding disorder.

The focus is on being well informed to make decisions about bleeding disorder treatment, education, work, life, and relationships. In other words, we pack a lot of topics into one weekend! There is even time for some fun with an emphasis on peer support.

Registrations will open soon.

Looking ahead:

Women’s wellness weekend. Late 2026. Venue TBC.

Traditionally haemophilia and bleeding disorder education has been geared towards men. This weekend-long workshop specifically targets women with bleeding disorders, and women who carry the haemophilia gene, of all ages. Women’s weekend offers a safe and supportive environment where women can increase their knowledge and discuss issues that relate to their age and stage, and living with a bleeding disorder.

National family camp. 21-24 January 2027, Wainui, Christchurch

Young families, where a child (0-10 years) is newly diagnosed with a bleeding disorder, often need support and information to manage the impact of the disorder on their family. The national family camp enables parents to access education in a supportive environment, while their children are enjoying their own recreational programmes. Opportunities are included for families to mix and mingle so that they can establish friendships and develop support networks with other families who understand and live with bleeding disorders.

Gabriel up the wall at TYC 2021