WFH

World Bleeding Disorder Registry 2019 Data Report now available 03/09/2020 12:00pm

The World Federation of Hemophilia's Research and Education Department is happy to announce that the WBDR 2019 Data Report is now published and available online.

The World Federation of Hemophilia Research and Education Department is happy to announce that the WBDR 2019 Data Report is now published and available online.

The WBDR is a web-based data entry system that provides a platform for a network of haemophilia treatment centres (HTCs) around the world to collect uniform and standardised patient data and guide clinical practice.

Implementation of the WBDR began with a global roll out in countries around the world in 2018, with a five-year goal of enrolling 10000 people with haemophilia, from 200 HTCs representing 50 countries.

This report is based on the 4,166 patients that were enrolled in the WBDR from January 2018 – December 2019 and highlights the clinical data from those enrolled in 2019 in more detail.

The report can be found online on the WFH WBDR page: https://www.wfh.org/en/our-work-research-data/world-bleeding-disorders-registry

It can also be downloaded from the eLearning platform: https://elearning.wfh.org/resource/wbdr-2019-data-report/

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