HNZ Board members

Chair: Hemi Waretini 

Ngati Maniapoto, Waikato Tainui

Tena koutou katoa
Ko Tainui te waka
Ko Waikato, Ko Maniapoto nga iwi
Ko Karioi, Ko Motakiora, Ko Owhawhe nga maunga
Ko Whaingaroa te moana
Ko Waikato, Ko Te Mangaokewa, Ko Waitomo nga awa
Ko Poihakena, Ko Te Tokanga-nui-a-noho, Ko Tokikapu nga marae
Ko Hemirau Waretini taku ingoa
Tena ano hoki koutou katoa

Hemirau has Haemophilia B and lives in Tamaki Makaurau/Auckland with his wife, Erica and their dog Zoey. Hemirau has been involved with HNZ from a young age and has supported national workshops, conferences and camps. Hemirau has been an active member of the Northern region and worked with others to lead subcommittees involving substantial work in the areas of Maori engagement and youth development. He was previously involved in the HNZ’s twinning with the Nepal Haemophilia Society, leading delivery of workshops aimed at developing the capability of youth members of Nepal’s bleeding disorders patient organisation. Hemirau works in the public sector.

Vice-Chair: Lauren Phillips

Lauren is a von Willebrand's patient with 20 years of HNZ involvement, having served on the board as both a youth delegate and regional delegate. She is also a member of the World Federation of Hemophilia's Women and Girls with Bleeding Disorders Committee.

She is currently involved in a pilot project providing period products to members, reflecting her commitment to addressing bleeding disorder impacts on women and girls nationally and internationally.

Treasurer: Karl Archibald

Karl is based in Christchurch and has severe Haemophilia A as well as a secondary condition, Classical Ehlers-Danlos Syndrome (cEDS).

Karl has been involved with HNZ from 1996 when he attended his first camp. From 2005 he has been an active member of the Southern Committee and a Board member since 2007. He has mentored and supported HNZ camps and activities and participated in international youth development and mentorship programmes such as SURO and AFFIRM. He has a particular interest in the future of the Haemophilia NZ and how to best support members.

Karl works as an Operations Manager for a construction firm overseeing maintenance of social housing between Christchurch and Palmerston North.

Piritoto delegate: Neville-James Reedy

Nev has been involved in HNZ for over 40 years, as a person with severe Haemophilia A. Originally from the East Coast of the North Island, Nev now lives in Invercargill and works fulltime as an Audio Engineer and Programme Facilitator at the Southern Institute of Technology. Being a native speaker of Te Reo Māori, Nev also fulfils the role as Tikanga Advisor for the School of Screen Arts in Southland.

Nev sees that the purpose of his position is to facilitate engagement and support, for the Polynesian and other ethnic minority groups in NZ. His goal for members is to encourage a positive and persistent challenge toward our personal limitations, believing that, by encouraging the collective building of a better relationship with ourselves, in turn, will better serve the wider bleeding disorders community as a whole.

Board member: Tineke Maoate

Tineke is based in Northland. She and her husband John both live with a bleeding disorder. They have seven beautiful children who also suffer from platelet disorders to different degrees.

Tineke enjoys working to support other members with bleeding disorders and sharing the challenges. Her family are all members of HNZ and have been privileged to meet other families and individuals living with haemophilia, von Willebrand’s, and platelet disorders.

In her spare time Tineke works as a volunteer fire fighter, board of trustees’ member for her children’s school and her and her husband foster children through Oranga Tamariki. She hopes to educate and support other families learning about their conditions.

Board member: Ashley Fowlie

Ashley has been involved with HNZ for over 12 years and currently chairs the Central Region. As a registered mental health nurse with 5+ years' experience, she’s passionate about supporting HNZ, advocating for women with bleeding disorders and von Willebrand's, and giving back to an organisation that's positively impacted her life.

Ashley has organised events, workshops, and education sessions, facilitating educational topics for the community. Her mental health expertise, leadership skills, and organisational abilities are valuable assets she brings can bring to support HNZ.

Board member: Conor Clerkin

Conor brings significant experience as a complaints manager and investigator (including with the Health and Disability Commissioner), with skills in critical analysis, sound decision-making, fairness, and collaboration. He is also an AMINZ accredited mediator.

As a parent of a child with severe haemophilia, he is motivated to contribute to HNZ's impact and help others benefit. He is interested in governance-level involvement to utilise his judgment and communication skills.

Youth delegate: Connor McCone

Connor McCone lives in Kirikiriroa Hamilton and is currently pursuing a law degree at Te Piringa Faculty of Law, University of Waikato.

Living with severe haemophilia, Connor serves as the youth delegate on the board. Before embarking on his legal studies, he worked as a welder and fabricator. Connor is actively engaged in the World Federation of Hemophilia’s Youth Twinning Programme in partnership with the Haemophilia Foundation of Pakistan. He looks forward to updating the members of HNZ on what is achieved during this partnership. 

Chief Executive: Deon York

Deon is the Chief Executive and an ex officio member of the board. You can read more about him here.